An update from my sister-in-law on Joshua's surgery today:
We have a big day ahead of us. Joshua will receive a tracheotomy with ventilator and g-tube today. Doctors anticipate he will need the support of a ventilator and trache for the rest of his life.
They will place a tube directly into his trachea (his throat) that will both protect his airway and help him continue to breath. They will also place a g-tube directly into his stomach for him to receive food. While this surgery is life-altering and will require a great deal of ongoing care, it will also provide more stability for Joshua. It also means we will be able to see Joshua’s sweet face, unobstructed by tubes and wires and tape. I will be able to hold him without nursing support. Currently, when I hold Joshua, it requires 2 nurses to place him in my arms and I need to stay still in the chair with him for at least an hour. Then it takes 2 nurses to put him safely back in bed.
After Joshua’s surgery, he will remain heavily sedated (I won’t be able to hold him) for about a week while the site of the surgery heals and they do the first tube change. His trache tube needs to be replaced once a week. Eventually, John and I will be trained on how to care for and change his tracheotomy.
Today, included lots of snuggles with mommy and some quality sibling time. A Child Life Specialist at the hospital met with Ben, Sam, and Hannah to show them what a tracheotomy looks like and talk about how it works. They each received a doll that has a tracheotomy. All the children (Benjamin especially) are very excited for this next step in Joshua’s journey. They can’t wait to see his sweet baby cheeks. And Benjamin is eager to hold his baby brother in his lap!
Joshua’s surgery is scheduled for 1:00pm today and should last about 4 hours. Please pray for Josh and his whole team of surgeons.
1 comment:
Praying for Joshua, his care team, and his whole family.
The work done by the child life specialist (and the program, and whoever saw a need there and tried to fill it) amazes me with its thoughtfulness, and inspires me once again with the varied ways people find to assist and love others.
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